National and International Organizations
Center for Disease Control and Prevention
Cleveland Clinic
Foundation for Sarcoidosis Research (FSR)
National Center for Complementary and Integrative Health
National Institutes of Health
National Organization for Rare Disorders
Sarcoidosis News
World Health Organization
SarcoidosisUK
Choosing A Doctor
FSR and WASOG Recognized Sarcoidosis Clinics and Centers of Excellence
Sarcoidosis Clinics and Physicians in the USA
The Sarcoidosis Doctor Database
WASOG Sarcoidosis Clinics
Support Groups
Bernie Mac Foundation
Breath and Life Foundation
FSR Support Group Listing
Johns Hopkins Patient Support Group
Reddit Sarcoidosis Group
Sarcoidosis UK Support Groups
The Sarcoidosis Support Group Database: Online Sites
Professional Organizations
American Academy of Dermatology
American Academy of Neurology
American Academy of Ophthalmology
American Association of Kidney Patients
American College of Cardiology
American Heart Association
American Liver Foundation
American Lung Association
American Neurological Association
American Optometric Association
American Thoracic Society
Arthritis Foundation
Arthritis National Research Foundation
ATS Public Advisory Roundtable
National Kidney Foundation
World Association for Sarcoidosis and Other Granulomatous Disorders
Social Services
Americans with Disabilities – Information and Technical Assistance
Department of Labor: Topics
Find Your Representative
HealthCare.gov
How to Contact Your Elected Officials
Social Security
U.S. Department of Labor: Unemployment Insurance
What is the Affordable Care Act
Research Initiatives
Collaborative research initiatives are essentially critical to identifying the cause, cure, and prevention of sarcoidosis. Enhanced methodologies and protocols are necessary in the effective diagnosis and treatment of patients. The holistic treatment of patients and educational components should be considered in terms of quality of life issues and the emotional and mental impact the disease has on patients. This approach allows patients the opportunity to consider lifestyle choices that can be made, and actions that can be taken to increase their survival rate, improved outcomes in the management of the disease, and an overall healthier life.
Xentria
Foundation for Sarcoidosis Research Grants
NIH Research Portfolio Online Reporting Tools (RePORT)
NIH Electronic Databases and Directories: Alphabetical List
The RESOLVE-Lung Study
*References for the following resources are from the National Institute of Health, National Center for Complementary and Integrative Health
NIH Clinical Research Trials and You
The National Institutes of Health (NIH) has created a website, NIH Clinical Research Trials and You, to help people learn about clinical trials, why they matter, and how to participate. The site includes questions and answers about clinical trials, guidance on how to find clinical trials through ClinicalTrials.gov and other resources, and stories about the personal experiences of clinical trial participants. Clinical trials are necessary to find better ways to prevent, diagnose, and treat diseases.
NIH: Finding a Clinical Trial
PubMed®
A service of the National Library of Medicine, PubMed® contains publication information and (in most cases) brief summaries of articles from scientific and medical journals. For guidance from NCCIH on using PubMed, see How To Find Information About Complementary Health Approaches on PubMed.
Research Portfolio Online Reporting Tools Expenditures & Results (RePORTER)
RePORTER is a database of information on federally funded scientific and medical research projects being conducted at research institutions.
U.S. Food and Drug Administration (FDA)
The FDA oversees the safety of many products, such as foods, medicines, dietary supplements, medical devices, and cosmetics. See its webpage on Dietary Supplements.
Toll-free in the U.S.: 1-888-463-6332