Patient Resources

National and International Organizations

Center for Disease Control and Prevention

Cleveland Clinic

Foundation for Sarcoidosis Research (FSR)

National Center for Complementary and Integrative Health

National Institutes of Health

National Organization for Rare Disorders

Sarcoidosis News

World Health Organization

SarcoidosisUK

Choosing A Doctor

Find a Physician 

FSR and WASOG Recognized Sarcoidosis Clinics and Centers of Excellence 

WASOG Sarcoidosis Clinics

The Sarcoidosis Doctor Database

Support Groups

FSR Support Group Listing

Sarcoidosis UK Support Groups

The Sarcoidosis Support Group Database: Online Sites

Triangle Sarcoidosis Support Group

Professional Organizations

American Academy of Dermatology

American Academy of Neurology

American Academy of Ophthalmology

American Association of Kidney Patients

American College of Cardiology

American Heart Association

American Liver Foundation

American Lung Association

American Neurological Association

American Optometric Association

American Thoracic Society

Arthritis Foundation

Arthritis National Research Foundation

ATS Public Advisory Roundtable

National Kidney Foundation

World Association for Sarcoidosis and Other Granulomatous Disorders

Social Services

Americans with Disabilities – Information and Technical Assistance

Department of Labor:  Topics

Find Your Representative

HealthCare.gov

How to Contact Your Elected Officials

Social Security

U.S. Department of Labor:  Unemployment Insurance

What is the Affordable Care Act

Research Initiatives

Collaborative research initiatives are essentially critical to identifying the cause, cure, and prevention of sarcoidosis. Enhanced methodologies and protocols are necessary in the effective diagnosis and treatment of patients. The holistic treatment of patients and educational components should be considered in terms of quality of life issues and the emotional and mental impact the disease has on patients. This approach allows patients the opportunity to consider lifestyle choices that can be made, and actions that can be taken to increase their survival rate, improved outcomes in the management of the disease, and an overall healthier life.

Foundation for Sarcoidosis Research Grants

NIH Research Portfolio Online Reporting Tools (RePORT)

NIH Electronic Databases and Directories: Alphabetical List

*References for the following resources are from the National Institute of Health, National Center for Complementary and Integrative Health

NIH Clinical Research Trials and You

The National Institutes of Health (NIH) has created a website, NIH Clinical Research Trials and You, to help people learn about clinical trials, why they matter, and how to participate. The site includes questions and answers about clinical trials, guidance on how to find clinical trials through ClinicalTrials.gov and other resources, and stories about the personal experiences of clinical trial participants. Clinical trials are necessary to find better ways to prevent, diagnose, and treat diseases.

NIH:  Finding a Clinical Trial

PubMed®

A service of the National Library of Medicine, PubMed® contains publication information and (in most cases) brief summaries of articles from scientific and medical journals. For guidance from NCCIH on using PubMed, see How To Find Information About Complementary Health Approaches on PubMed.

Research Portfolio Online Reporting Tools Expenditures & Results (RePORTER)

RePORTER is a database of information on federally funded scientific and medical research projects being conducted at research institutions.

U.S. Food and Drug Administration (FDA)

The FDA oversees the safety of many products, such as foods, medicines, dietary supplements, medical devices, and cosmetics. See its webpage on Dietary Supplements.

Toll-free in the U.S.: 1-888-463-6332