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“I’m tired. I’m fatigued. I’m exhausted. I don’t feel well. I’m short of breath. There are nodules on my skin. There are nodules in my lungs. My fingers are disfigured. The iris in my eyes are inflamed. I was undiagnosed. I was misdiagnosed. I’m suffering from the side effects of prednisone. I’m sick 5 days out of the week from taking methotrexate. Do I live with the symptoms of sarcoidosis untreated, or do I risk the adverse side effects of the medications used for treatment? My friends and family say I don’t look sick, yet I feel awful and my quality of life is extremely poor. No one understands what I’m going through. I’m tired of having sarcoidosis. I’m still fatigued. I am hopeful.”
Do any of these statements sound familiar to you? At some point since 1981 I’ve experienced all of the above, plus more. You are not alone. Many of us are on this journey. I hope this website is informative and helpful to you and yours.
Wishing you all the best,
Paula

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